Rebloom 再次盛开 - Interview Voicemail 详细采访 Original

受邀于由日本制药公司Takeda和英国公关公司Hill+Knowlton Strategies，我为他们发起的“I Am Number 17”罕见疾病公益宣传项目创作了互动影像装置作品《The Strength to Rebloom》。（2020） 在该项目中，17个艺术家分别与17个对罕见疾病有很深羁绊且有杰出贡献的病人或病人家属配对合作。我的合作对象Alan Thomas是一名共济失调症（Ataxia）患者，同时也是慈善机构“Ataxia&Me”的创始人。 为了让大家欣赏艺术作品之余，也对罕见疾病增加一些实质性的了解，我整理了跟Alan交流时的语音记录，以及我个人做的一些研究，制作了这条影片，尝试以更实验性的视觉表达与更密集的信息呈现这个项目的纪录。 若你对装置作品本身感兴趣，欢迎移步上一个视频“Installation 装置作品 - Rebloom 再次盛开”。 . . In January, I was involved in a great campaign “IAmNumber17” founded by Takeda, to arise awareness of rare diseases. Partnered with Alan Thomas (Instagram @ataxia_and_me) , I created a video installation inspired from his experience of living with a rare diseases called Ataxia. At the beginning of this project, I had several phone call interviews with Alan, getting to know about what Ataxia is, and how it affects the patients experience. I’ve never heard of Ataxia before this project. And I assume not many of us had or would come across this rare disease. So I edited a research video with Alan’s voicemail interview. For more details about the installation please check out the other video “Interactive Installation - Rebloom”.